Michael Geist
Law Bytes
Episode 61: Senator James Cowan on the Extraordinary Battle for a Genetic Anti-Discrimination Law in Canada
0:00
-38:37

Episode 61: Senator James Cowan on the Extraordinary Battle for a Genetic Anti-Discrimination Law in Canada

As the broad availability of genetic testing has mushroomed over the past two decades, privacy and potential discrimination concerns associated with testing results has increased. Until recently, Canada lagged behind other countries in this regard with no specific national legislation. That changed in 2017 with the enactment of the Genetic Non-Discrimination Act. The Act was quickly challenged on constitutional grounds, but earlier this month a divided Supreme Court of Canada upheld its validity.

The law underwent a remarkable parliamentary journey featuring opposition from successive governments, lobbying against the bill by the insurance industry, passage in the House of Commons despite objections from then-Justice Minister Jody Wilson-Raybould, and a court challenge in which the government supported the effort to declare the law invalid. Senator James Cowan, who was the lead proponent of the legislation, joins me on the podcast to discuss what prompted him to take on the  issue and the unlikely path of Canada’s genetic non-discrimination law.

The podcast can be downloaded here and is embedded below. Subscribe to the podcast via Apple Podcast, Google Play, Spotify or the RSS feed. Updates on the podcast on Twitter at @Lawbytespod.

Show Notes:

Supreme Court of Canada, Reference re Genetic Non-Discrimination Act

Credits:

CTV News, Genetic Non-Discrimination Law is Constitutional, Supreme Court Says

0 Comments
Michael Geist
Law Bytes
In recent years the intersection between law, technology, and policy has exploded as digital policy has become a mainstream concern in Canada and around the world. This podcast explores digital policies in conversations with people studying the legal and policy challenges, set the rules, or are experts in the field. It provides a Canadian perspective, but since the internet is global, examining international developments and Canada’s role in shaping global digital policy is be an important part of the story.
Lawbytes is hosted by Michael Geist, a law professor at the University of Ottawa, where he holds the Canada Research Chair in Internet and E-commerce Law and where he is a member of the Centre for Law, Technology and Society.